Health Literacy and Privacy in a Pandemic World

Presented by the Library Freedom Project in partnership with the Cherry Hill Public Library, the Chinese American Librarians Association,

and the Network of the National Library of Medicine.

 

Join us for a five-part webinar series focused on issues surrounding health literacy and privacy.  Each webinar will provide quality information that librarians can use to better serve their patrons.  All webinars are free and open to library workers of all types.  Please register for each webinar separately.

Developed resources reported in this project are supported by the National Library of Medicine (NLM), National Institutes of Health (NIH) under cooperative agreement number UG4LM012342 with the University of Pittsburgh, Health Sciences Library System. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.

 

Webinar 1: Health and Privacy Basics

 

Friday, March 5 at 1 p.m.

Speaker Name: Adrian Gropper

Program Description: Attendees will receive a broad overview of health and privacy issues, why they matter, and what we can do to help.

Speaker Bio:

Adrian Gropper, MD is CTO of the non-profit Patient Privacy Rights Foundation where he brings training as an engineer from MIT and physician from Harvard Medical School followed by a career as a medical device entrepreneur. His paper won a prize at ONC’s 2016 Blockchain Health competition. His current project, Trustee by HIE of One (Health Information Exchange of One) is an open source reference implementation designed to influence standards work on self-sovereign agent technology and self-sovereign identity. A patient-controlled standards-based health record is independent of any particular institution or government. It accelerates and reduces cost of both the research and clinical uses of digitally signed, blockchain timestamped patient data by eliminating data brokers and other intermediaries.

 

This is the first in a five-part webinar series.  Registration is free and open to library workers in all types of institutions.  Click here to register: https://us02web.zoom.us/webinar/register/WN_SqAW0bM9Ts-Bl4BoSM-gWQ

 

 

Webinar 2: Ethical Implications of Digital Health 

 

Friday, March 12 at 1 p.m.

Speaker Name: Katherine Gregory

Program Description: This session addresses some ethical issues that occur when engaging with digital health products. The concept of digital health is vast and rapidly changing, exposing how different processes across commercial, medical and recreational sectors engage with consumer health data. Along with the development of these technologies there has been a shift in how health and medical interventions are conceptualized, diagnosed and interpreted. Specifically, the emergence of self-testing and self-reporting biometrics has accelerated the datafication of health as a commodity. What has emerged from these processes is a blurring between consumer and data, where health analytics take on a life of their own as they are transferred to cloud storage, become composited, and then repackaged and sold in bundles to divergent markets. This has been brought on by the availability of software capable of handling vast amounts of data and interpret trends and behavior across all aspects of social life. Data ownership, crowdsourcing and privacy issues are among some of the most pressing concerns affecting digital health developments. In this seminar, I argue for a revision of guidelines on the use of health technologies, ownership of medical information, privacy settings, and patient consent.

 

Speaker Bio:

Dr. Katherine Gregory is an interdisciplinary scholar-practitioner with 20 years of research and social marketing experience. Currently, Dr. Gregory is an Assistant Professor of Health Services Administration in the Department of Health Sciences at New York City College of Technology/CUNY. At NYU, she was a qualitative data analysis and survey design lead for the University and an Adjunct Associate Professor at the School of Global Public Health. Before joining NYU, she spent over five years at the New York City Department of Health and Mental Hygiene as its media evaluation researcher where she oversaw concept testing and evaluation of health media campaigns and provided social marketing and public communication outreach strategies for departmental clients. She has taught in several disciplinary programs at universities in the United States. Her book, The Everyday Lives of Sex Workers in the Netherlands (Routledge, 2005), addresses working conditions, cultural practices, and social agency of transgender and migrant sex workers. She writes about critical qualitative methodologies, technology and the social aspects of genetics. Dr. Gregory holds two master's degrees from Boston College (sociology) and S.I. Newhouse School of Public Communication at Syracuse University (TV-Radio-Film).  She obtained a doctorate in sociology from the Maxwell School of Citizenship and Public Affairs at Syracuse University. 

 

This is the second of a five-part webinar series.  Registration is free and open to library workers in all types of institutions.  Click here to register: https://us02web.zoom.us/webinar/register/WN_jTPqJziwSrGdCQQbhOrG8w

 

Webinar 3: Your Heartbeat is Digital 

 

Thursday, March 18 at 1 p.m.

(Please note: this webinar is on Thursday, not Friday)

Speaker Name: Megan Threats

Program Description: The speaker will discuss privacy concerns related to the use of health technologies including contact tracing apps during the COVID-19 pandemic, and attitudes toward the use of telehealth modalities to support health and wellness among vulnerable populations. During the seminar, the speaker will discuss the value of librarians contributing to health technology design processes, and strategies for assisting users who may be interested in using digital health to support their health and well-being. 

 

Speaker Bio: Dr. Megan Threats is an Assistant Professor in the Department of Library and Information Science at the School of Communication and Information at Rutgers University - New Brunswick. She is also Visiting Faculty at the Yale School of Public Health. She studies how sexual and gender minority communities of color access and interact with health information and services through the use of technologies.

This is the third of a five-part webinar series.  Registration is free and open to library workers in all types of institutions.  Click here to register: https://us02web.zoom.us/webinar/register/WN_tMlkl2hQSE2MHijksVRmyg

 

Webinar 4: Understanding Health Information 

 

Friday, March 26 at 1 p.m.

Speakers: Khalil El-Bathy and Stephanie Milberger

Description: : Attendees will learn how to recognize misinformation, how to read and understand published health information, and how to help patrons understand or work around jargon.

 

Speaker Bios:

Khalil El-Bathy is the Reference & Instruction Librarian at SOWELA Technical Community College, and a graduate of the Library Freedom Institute.

Stephanie Milberger is a librarian for Rockwall County Library in Rockwall, Texas and a graduate of the Library Freedom Institute.

This is the fourth of a five-part webinar series.  Registration is free and open to library workers in all types of institutions.  Click here to register: https://us02web.zoom.us/webinar/register/WN_pkKUDWavQS24h2zhNXUQNQ

 

Webinar 5: Finding Reliable Health Information 

 

Friday, April 2 at 1 p.m.

Speaker: Anna Winter

Program Description: The speaker will provide resources and tips on how to find reliable health information to better assist patrons with reference questions.

Speaker Bio: Anna Winter is a Technology Specialist at the Denver Public Library and a graduate of the Library Freedom Institute.

This is the fifth of a five-part webinar series.  Registration is free and open to library workers in all types of institutions.  Click here to register: https://us02web.zoom.us/webinar/register/WN_Ii9e1sXGRomX26ETS_q9Qw